Why not add another drain on our family finances by adding Rheumatologists to the mix?

I’ve been in pain for days and it finally rained a minute ago and quit. What a disappointment. If I’m going to hurt this bad I at least want a huge lightening storm, some wind, lots of thunder and lots of RAIN.
Is that too much to ask for all my troubles here?

I think about how ‘lucky’ I am. I am taking 90mgs of morphine right now per day, (extended release) yet this pain is breaking through the morphine with ease.
I hate to even THINK what this will feel like if I wasn’t on morphine??!?!?!!?! This is killing me ON it, I know it would kill me without it. I don’t even want to think how bad the pain truly is sans meds.

Feel better soon. If I find a Dr worth a $hit I’ll be sure to pass on the information. I’m thinking of going to UNC-Chapel Hill?? I’m disappointed with Duke but that might not be a bad idea either.
Julie

Sherri

Here in NC I’ve noticed, especially being near the coast, these storms ZOOM though here at a high rate of speed. I think the barometer goes crazy and stays out of whack, especially if the storm zooms past you and doesn’t drop any rain. (like today……I could have peed on the sidewalk and got it wetter than the ‘rain’ but the sky is full of rolling clouds, not a drop of rain)

Where abouts in NC? I’m near Johnson AFB (not AF family) in Goldsboro.

Did your eyesight get better? stay the same? get worse?

My hubby talked to his mother, she’s an RN and works for BC/BS in another state. He told her what is going on…..first she said the Drs in the south are QUACKS. (yea I’m seeing a duck on Friday)

She said under NO UNCERTAIN TERMS should I have been prescribed Levaquin for 5-6 consecutive WEEKS let alone Levaquin AND prednisone together…..ever.

I’m going to get my records from Walgreens tomorrow and when I go to my pain management doc on Friday I’m getting ALL of my records from him. (his physician’s asst prescribed my 1st and 2nd dose of Levaquin with prednisone for one of those weeks…..my ear nose and throat doc prescribed the levaquin for the other weeks along with prednisone for 1 week)

My MIL said that I have a damn near open and shut cause for filing a malpractice suit against the Ear Nose and Throat doc for prescribing like he did. (one week he didn’t prescribe but his PA gave me 2 weeks worth of samples) I’m getting those medical records next week if I have to drag my body down there……then I’m going to start calling more lawyers.
They prescribed far out of the pharmacological guidelines to prescribe that long.

I feel like I’ve been POISONED and nobody gives a $hit……nobody ‘gets it’ but other victims.

I know if you live in NC we probably won’t ever meet. If you feel like me, we’re not going anywhere. I can barely drag my butt out of bed let alone do basic human functions like SLEEP (whats sleep?), walk, bathe (but I managed today YAY)

I’m at a loss what to DO beyond what I’ve done so far. (and plan on in the future)

I’m in a lot of pain, the disabilities are getting worse……but I’m not about to give up or give in, I’m a FIGHTER.
I think I lost round 1 but I’m back up and ready for round 2.

Feel better…..at least you know you’re not crazy because there is another person (me) in your state that has been floxed and is experiencing many of the same problems.
One day at a time huh?

Julie

Sherri

I don’t know what your antibiotic choices are, but I have advice on
how you can prevent sinus infections in the future. When you feel
that conditions are ripe for an infcetion, such as allergy season,
you can irrigate your sinuses using a netti pot. You could find
them in most drug stores. It basically looks like a small genie
bottle. You fill it with water, add some salt, tilt your head to
the side, and insert the water in one nostril. It should then come
out of the other nostril.

I hope you feel better, and let me know which antibiotic you ended
up taking.

Seena

It sounds like you have a very good case against the pharmacy and the Dr. I hope someday we’ll all have a case against the manufacturer.

I can very much relate to your looking forward to having a LIFE after children. Mine are 26 and 23, long moved out so its just me and hubby. (and our foreign exchange student from China that arrives the 16th to spend the school year with us!! We’re looking forward to having her here!)

I cannot get a job outside of my home either. Luckily I’ve had a candle company that supplements our income between Sept-March, Christmas being my very busy season.
I don’t know HOW I’ll handle this Christmas other than I’m hoping to have some help via our exchange student daughter )

Julie

Where abouts in Michigan are you?

Julie

Diane

Wow you were given a double whammy with the Levaquin and then the pharmacy fills the prescription with a larger than prescribed dose. (SUE SUE SUE!)

I can’t tell you how long this will last, I’ve been dealing with this since Jan/Feb myself.
I took Levaquin 750 and 500mgs a day along with Prednisone for 2 weeks of that……..took all that for 5-6 WEEKS. It could have been 7 weeks because I was given weeks worth of samples of Levaquin (without prescribing information)

Have you filled out the FDA complaint form for the Levaquin and what has done to you?? (the link is in the file section and I have it set to send out to the group once a month) Please fill out that form, the more people that complain the better off we’ll be in the long run. If nothing else perhaps we’ll save someone else from enduring what we’re going through.

Have you had any tendonitis/tendon pain since this began?
Someone told me that the optimal time for a spontaneous tendon rupture is around 9 months out, which I’m fast approaching. I’ve also had intermittent tendonitis in my right shoulder, right elbow and right wrist. I’m pretty scared at the possibility of a tendon rupture.

I’ve also had joint/muscle pain and the burning sensation in my legs/feet that will not go away for nothing.

You’re very lucky that you have a neurologist that believes you and what happened to you……..trust me that is a lot of the battle, finding a Dr that BELIEVES you.

I don’t know if I suffer from depression related to this, its certainly possible but its also something I’ve fought for years due to another condition (an endocrine disorder)

I’m just plugging along, dealing with these issues without help. I’m being ignored by the prescribing Drs but I made the ear nose and throat doc put it in my medical records…….beyond that I’m just left hanging.
I think too that if I try to find a Dr to help me I’m going to end up going bankrupt because there simply isn’t anymore money after my normal monthly Drs appt and my monthly prescriptions for my back pain.
(spina bifida occulta w/back injuries)

Let’s see, I’m 7-8 months out since I started taking Levaquin and I’m still in pain. I don’t know how much longer its going to last or if it will ever go away.
It seems to have gotten somewhat better but hasn’t gone away altogether.

Please fill out the FDA complaint form. The better the paper trail the (hopefully) better off we’ll be.

Hang in there. I hope somebody else will give a little background on their pain and how long it has been for them.

Julie